To everyone that I have had the opportunity to speak with at the RASopathies Foundation Conference, I want to say thank you. Raising a child with Noonan Syndrome or with any special need can be challenging. Living as an adult with challenges relating to Noonan Syndrome can be equally daunting. It is my hope that some of the information from my presentation at the conference may benefit those who attended. If you would like a copy of the exhibit, simply click on the link in the top right of this page to contact me.
The purpose of this website is to offer general help and advice to those folks who are navigating a Social Security Disability or SSI filing. This process can be long and arduous, but the greatest chance to successfully navigate these waters is help by those who are diligent about collecting treatment records, and those who fight for benefits using the framework set forth by the Social Security Administration. I hope you find some useful information herein, and am happy to be a resource to any of my readers.